Munsters!

Our recent conversation...

Katie: There are pink munsters outside our windows!

Mommy: What should we do about it?

Katie: We can eat them, they taste like pizza

Her imagination amazes me!

Dancing with angels

There are not words to describe Layla Grace's story. At two years old, she got her angel wings today after an awful battle with neuroblastoma. Her struggle and treatment were shared by thousands on Twitter, as her parents reached out for support and to share her story.

In the end, it was so rough on such a little body. I can't imagine what her parents are going through right now and hope that they know she is up in heaven with all the other children affected by NB. At the bottom of this post are some links to Layla's story, but be prepared...they are heart wrenching and the worst nightmare any parent could imagine. Here are some recent messages from her parents:

Layla hasn't woken up at all today. She slept through diaper & clothes changes, books, & me reading sweet cards that have been sent to her 7:13 PM Mar 7th via Tweetie

Layla is still sleeping. Occasionally she makes noises that indicate she's in pain, but she hasn't woken up in a few days. 8:23 AM Mar 8th via web

Mommy is rocking Layla. She has only opened her eyes once today. Her feet are getting cold too. 11:17 AM Mar 8th via Tweetie

Layla went to play with the angels early this morning. Rest in peace precious Layla. 11/26/2007 - 3/9/2010 about 8 hours ago via web

Article: http://www.examiner.com/x-30706-Suddenly-Famous-Examiner~y2010m3d9-RIP-Layla-Grace-Cancerstricken-toddler-who-gained-fame-on-Twitter-passes-away

Layla Grace's blog: http://laylagrace.org/

Twitter: http://twitter.com/laylagrace

Rest in peace Layla Grace

We will all keep fighting for a cure!

Emily is a little jumpy

We broke out the Jumperoo a couple weeks ago. Emily wasn't too sure about it, at first, but now she really has the hang of it and thinks it is pretty funny too!

Most everyone knows by now, but we had a great trip to Chapel Hill. The neuroblastoma decreased in size again! I don't have an exact report yet, but it looked to be about 50% smaller from what I could see!

The doctor also noticed Emily's eye (which is partially blue/gray and partially brown). It is called partial heterochromia (or sectoral heterochromia)...see link for more info. Apparently it is more common to have one eye brown and one eye blue (complete heterochromia), but Emily has half and half in her right eye. There have been some studies linking it to neuroblastoma, but I couldn't find much information on it. Still researching!